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January 2014 Newsletter

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Download the complete January 2014 newsletter in a PDF format to read the following articles about Teens Writing, April Farrell-Hasty, Transition from Teen to Adulthood, and Farewell to Dr. Hobbs.

September 2013 Newsletter

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Download the complete September 2013 newsletter in a PDF format to read the following articles about Prescription Pill Dangers, Camp Korey, and Rehabilitation.

Teens Writing from the Heart of Illness and Healing

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Teens Writing from the Heart of Illness & Healing is an week workshop for teens living with chronic health or mental health issues. It is being held at Odessa Brown Children’s Clinic in the central area and is open to teens aged 12 to 18 years. It is free.

Spotlight: April Farrell-Hasty

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April Farrell Hasty was visiting Seattle for a conference from her home in Tampa, FL, and took time to drop by one of the Seattle Task Force meetings. April has Sickle Cell Anemia. She was diagnosed at two years old and is 51 years young now.

Transition from Teen to Adult with Sickle Cell

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What happens when your child becomes an adult? Your teen will leave home eventually and you want them to be well prepared. In this article read about what makes this transition difficult, going away to college, and tips for parents.

Farewell to Dr. Hobbs

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We sadly say goodbye to a valuable friend and partner Dr. Bill Hobbs. Dr. Hobbs is very grateful for the relationships that he has formed over the years while fulfilling his roles at the Puget Sound Blood Center, University of Washington, and at the Seattle Cancer Care Alliance.

Who is the Metropolitan Seattle Sickle Cell Task Force and What Do We Do?

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The Metropolitan Seattle Sickle Cell Task Force (MSSCTF) was incorporated as a 501(c)(3) organization in 1994. The MSSCTF was the brainchild of Gertrude Dawson, Elizabeth Thomas, and others who had a vision about getting help for an underserved population of people with terrible health issues—people with Sickle Cell Disease.

Sickle Cell Camp 2013

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Metropolitan Seattle Sickle Cell Task Force provides an annual camp (we just celebrated its 21st year) for local kids with Sickle Cell Disease at no charge to their families. To view photos, click on photo link or caption link. Published in September 2013 newsletter

Prescription Pill Dangers

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Many people go through everyday aches and pains. Some people suffer because of old sports injuries, some from various accidents, and others because of disease. Most people rely on prescription pain relievers given to them by a doctor and don’t really consider some of the long-term effects. We in the Sickle Cell community depend on these medications and need to be informed about what we use.

Camp Korey: Family Camp

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2013-09-camp-korey-site-thumbnailCamp Korey is a nonprofit organization, which provides camping programs to children living with chronic or life-threatening medical conditions free of charge. They are located in Carnation, Washington...

Getting Involved: Introducing Ms. Salome Njenga

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Salome Njenga is one of the newest members of the MSSCTF. She works at the Seattle Cancer Care Alliance (SCCA) in the laboratory. Salome is one of the nurses who work with Sickle Cell families when they come in to do their lab work for exchanges.

A Personal Story about Pain

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What is pain? Some say that pain is just a mental sign of weakness. Some say it’s the physical aspect of the growth and regeneration of your body. Do you remember when you were a kid and you got hurt or were sick and your parents or guardian told you that it was all in your mind? Well that may have actually been true in many cases.

A Day at the Capital

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On Wednesday February 1st I had the pleasure of going to Olympia for “Have a heart for kids day”. On this great trip I was joined by Foxy, Jason, Salome (Nurse at SCCA), Joe, Annette, Judah and Zion.

Pain Control: An Interview with Robin Matthews

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Robin Matthews is a Family Nurse Practitioner at Seattle Cancer Care Alliance. Robin graduated from Columbia School of Nursing, in New York, with an M.S. in 2009. Robin has been working with Sickle Cell patients at SCCA since November 2011.

Pizza Night: Pain Medicines Discussion Group

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Our last pizza night was held on October 20, 2012 at Round Table Pizza in Federal Way. The discussion topic for the evening was Pain Medication. We had a great group discussion and there were a range of ages present during the night.

What is Hydroxyurea?

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Is a chemotherapy agent with a potent effect on the bone marrow. The agent was used for many years to treat people with certain types of cancer. Hydroxyurea is an antineoplastic (cancer fighting) agent available for oral use as capsules to affect certain cells in the body such as cancer cells or sickle red blood cells. It can also be made into a liquid by a compounding pharmacy. Hydroxyurea and blood transfusion are our most powerful treatment options for significant complications in people with Sickle Cell Disease. Hydroxyurea will not cure SCD; however, it has been having surprising results in people with Sickle Cell.

Sickle Cell Pain with Dr. Bender

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Dr. Bender is a Doctor of Pediatric Oncology and Pediatric Hematology at Odessa Brown’s Children’s Clinic in Seattle. He has been working with Sickle Cell patients for about 15 years.

Hemoxide: A New Alternative for Pain Relief?

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Sickle Cell Anemia affects over 70,000 people in the U.S. alone. For most people with the disease one consequence is severe pain. If they’re lucky, the pain lasts for a short while, but for many the pain can last for days, weeks, or even longer.

February 2013 Newsletter

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Download the complete January 2013 newsletter in a PDF format to read the following articles about Pain Management, Hydroxyurea and A Day at the Capitol.

September 2012 Newsletter

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Download the complete September 2012 newsletter in a PDF format to read the following articles about Sickle Cell Camp 20th Anniversary and Internships.

December 2010 Newsletter

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Download the complete December 2010 newsletter in a PDF format to read the following articles about 2010 Year at-a-Glance, 5th Annual Sickle Cell Walk, Sickle Cell Camp, L.I.P.S. Event, and Scholarships Awards: Debra C Carter.

May 2010 Newsletter

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Download the complete May 2010 newsletter in a PDF format to read the following articles about Tips for the Emergency Room, Members of the Sickle Cell Community, Sickle Cell Camp, Cooking Up Community and Healthy Recipes.

January 2010 Newsletter

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Download the complete January 2010 newsletter in a PDF format to read the following articles about 100th Anniversary of Sickle Cell Anemia in Western Culture, Living with Sickle Cell Disease, and Healthy Recipes.