The Metropolitan Seattle Sickle Cell Task Force (MSSCTF) was incorporated as a 501(c)(3) organization in 1994. The MSSCTF was the brainchild of Gertrude Dawson, Elizabeth Thomas, and others who had a vision about getting help for an underserved population of people with terrible health issues—people with Sickle Cell Disease.
The MSSCTF is charged with educating, supporting, and advocating for those of us with Sickle Cell Disease. The MSSCTF also partners with the Northwest Sickle Cell Collaborative to help educate medical professionals, hospitals, and others about Sickle Cell Disease and Sickle Cell trait. It takes a combination of people with various skills to provide for our Sickle Cell community. The MSSCTF also partners with community leaders, local businesses, and volunteers to provide guidance, vision, and support to the MSSCTF.
The MSSCTF advocates for people with Sickle Cell by listening to those of us in the local Sickle Cell community, reaching out to hospitals, physicians, and nurses who provide care for those that do have Sickle Cell to establish and promote two-way communication, which promotes better medical care. For example earlier this year, providers, families of patients with Sickle Cell, and Sickle Cell patients shared some pizza and spoke about expectations related to patient care.
The MSSCTF also provides an annual camp (we just celebrated its 21st year) for local kids with Sickle Cell Disease at no charge to their families and a scholarship fund to help local young adults with Sickle Cell with college costs. We participate in local health fairs to educate the public about Sickle Cell Disease and Sickle Cell Trait. The MSSCTF is composed of individuals who volunteer their time with Sickle Cell Disease, families affected by Sickle Cell Disease, and others who care deeply about Sickle Cell.
Despite being incorporated in 1994 the MSSCTF has remained a grassroots organization still striving to make a difference in the world of Sickle Cell Disease.
Published in September 2013 newsletter. Written by Ken West, President, MSSCTF