We are conducting a study to better understand the associations among pain, fatigue, emergency department use, disruptions in valued activities, perceived control, and quality of life among adults living with sickle cell disease. We want to find out more about quality of life in sickle cell by asking you – the people who know best. Participation in this study is entirely voluntary. All responses that you provide are completely confidential.


To be eligible, you should be 18 years of age or older, diagnosed with a sickle hemoglobinopathy, able to read and write in English, and have access to a desktop/laptop computer, tablet, or smart phone. The online survey will take approximately 25 minutes to complete. After you finish, you can choose to receive a $20 Amazon eGift card. If you are interested in the study, please contact Lakeya McGill by telephone (443-832-3065) or email (