College Life: Lessons Learned

I had the privilege to catch up with Laelah Ndifon this month. Laelah is currently a junior at Washington State University. Laelah graduated in 2014 from John F. Kennedy Catholic High School and she was so excited to be accepted at WSU. She was really looking forward to finally being independent and exercising unlimited freedom. She was nervous, however, about getting sick while away from home. So alongside her parents… Read More »College Life: Lessons Learned

College Life: Scholarship Recipient Update

______________________________________________________________ Karim How has school been for you this year? Honestly it’s been great. I have been in a learning environment and I’ve gotten stronger using the school gym. I might get the chance to run the gym as an intern for the athletic coordinator. I have also met a lot of people and I appreciate everyone’s help for everything. I love south campus! It has been nothing but improvement… Read More »College Life: Scholarship Recipient Update

College Life: Scholarship Recipient Update

      Congratulations to our 2015 scholarship recipients: Karim and Seraj. I got the chance to check in with them about their school year.         Seraj  How has school been for you this year?   I am excited that I will graduate from Seattle Central College by the end of the summer. I am only taking science classes because of my engineering major.   What has… Read More »College Life: Scholarship Recipient Update

Education Series: Pain Treatment with Dr Walco

I have truly enjoyed the Educations Series sponsored by the Task Force this spring. We have really had some amazing guest speakers and I have learned so much. In June Dr Gary Walco, Director of Pain Medicine at Seattle Children’s Hospital, came and spoke with us about pain treatment. Some highlights from this session include: In the past 10 years the number of hospitalizations, opioids dependency, abuse and overdose has… Read More »Education Series: Pain Treatment with Dr Walco

Laughing Yoga Session

Nikki E. Akparewa, RN, MSN/MPH is an advanced practice nurse and wellness coach who loves to use the joyful nature of laughter to help people create healing in their bodies by building awareness of self. Laughter Yoga even strengthens the immune system which not only prevents you from falling sick, but also helps to heal a variety of illnesses like hypertension, heart disease, diabetes, depression, arthritis, allergies, asthma, bronchitis, backache, fibromyalgia, migraine… Read More »Laughing Yoga Session

Applying for SSI, Personal Perspective

Living with Sickle Cell Anemia involves much more than just dealing with a horrible and painful disease, it affects you & your family’s lives on daily basis financially as well. In fact the financial part & obligations can be more stressful and painful than the disease itself, & they don’t stop just because you’re sick. I’m sure some financial guru has estimated the financial burdens of the medical expenses are… Read More »Applying for SSI, Personal Perspective

Education Series: Hydroxyurea Recap

Dr. Bender spoke about Hydroxyurea. Hydroxyurea is a drug used for more than 20 years to reduce the likely hood of Sickle Cell pain crisis. Hydroxyurea is recommended by Dr. Bender and the Metropolitan Sickle Cell Task Force. Dr. Bender talked about the mechanism of action of Hydroxyurea which is the ability to increase fetal hemoglobin. A 2006 study by Balles and Barton cited that Hydroxyurea reduced sickle cell crisis… Read More »Education Series: Hydroxyurea Recap